Table 6

Patient characteristics type of disease—health-related information

CDUCIBD_NSAll
Age at diagnosis
 0–5 years44 (11.1%)23 (11.3%)19 (30.6%)86 (13.0%)
 6–9 years139 (35.0%)73 (35.8%)19 (30.6%)231 (34.8%)
 10–13 years190 (47.9%)92 (45.1%)20 (32.3%)302 (45.6%)
>14 years24 (6.0%)16 (7.8%)4 (6.5%)44 (6.6%)
Course during last year
 Stable remission161 (40.4%)85 (41.3%)29 (46.0%)275 (41.2%)
 One relapse116 (29.1%)49 (23.8%)20 (31.7%)185 (27.7%)
 More relapses/chronically active122 (30.6%)72 (35.0%)14 (22.2%)208 (31.1%)
Current health status
 Good261 (65.1%)137 (66.5%)40 (63.5%)438 (65.4%)
 Moderate115 (28.7%)46 (22.3%)19 (30.2%)180 (26.9%)
 Poor25 (6.2%)23 (11.2%)4 (6.3%)52 (7.8%)
Disease duration
 <1 years57 (14.3%)29 (14.1%)11 (17.5%)97 (14.5%)
 1 to <2 years61 (15.3%)29 (14,1%)8 (12.7%)98 (14.7%)
 2 to <5 years167 (41.9%)84 (41.0%)17 (27.0%)268 (40.2%)
 5 years+114 (8.5%)63 (30.7%)27 (42.9%)204 (30.7%)
Resecting surgery
 Has had surgery31 (7.7%)12 (5.8%)2 (3.2%)45 (6.7%)
Therapy
 Ever had corticosteroids284 (83.8%)153 (86.9%)36 (69.2%)473 (83.4%)
 Ever had biological131 (32.4%)31 (14.9%)10 (15.9%)172 (25.5%)
 Ever had immunomodulators334 (82.7%)137 (65.9%)27 (57.1%)498 (74.1%)
Total40420863675